So last night after I fed the girls , I was sitting on the floor with Noel, she was in a spunky little mood, its so nice to see her smile and giggle, I had her sit up and gave her a braille book. I ran her fingers across the bumps a few times and then stopped, she continued to run her hands across the bumps all by herself and open the pages, it was so nice to see her do this. Noel feels all sides of a toy, book etc - she was exploring this new book she had gotten " Yummy, Yucky"
She only played with the book for a few minutes and then she got tired of it - so I layed her on the floor and tickled her and she started laughing and giggling. I just love these moments
10/19/09
10/10/09
Its not an Easy life BUT ITS..... MY LIFE!!!!!
Well I think im doing a lil better now - its the end of the week and Im taking it all in. Yes , my baby girl is blind, i probably knew that before this but didnt want to fully believe that - keeping the faith I suppose is what they call it.
Its not going to be an easy to road, but we have help from the Romney School for the Blind , they are helping us some with teaching us about Noel and the different things she does , and we are going to have an Occupational Therapist start to come in and work with Noel, so hopefully things will start to improve.
I feel like I neglect Noel at times, you would never even know she is there unless she is very hungry or has a dirty diaper and then she gets fussy , but she is very content just sitting in her bouncy or laying on the floor, but as soon as I walk in the door from a long day at work and my sighted daughter see's me - she wants my attention. Being they are twins one is sighted and one is not - its hard. I know Noel hears my voice when I come home and Im sure she is happy with that but I want to be able to juggle both of them, read the bumpy books to her, let her feel them, let her explore her surroundings, all while trying to catch up with her sister who is into everything because she is much more advanced due to her having the sight to see what she wants and go after it. That part really tears me apart.
We dont have close family by that can come and help us, so it makes it much harder.
Like I said before. Its not an Easy life - But its ...... MY life
Its not going to be an easy to road, but we have help from the Romney School for the Blind , they are helping us some with teaching us about Noel and the different things she does , and we are going to have an Occupational Therapist start to come in and work with Noel, so hopefully things will start to improve.
I feel like I neglect Noel at times, you would never even know she is there unless she is very hungry or has a dirty diaper and then she gets fussy , but she is very content just sitting in her bouncy or laying on the floor, but as soon as I walk in the door from a long day at work and my sighted daughter see's me - she wants my attention. Being they are twins one is sighted and one is not - its hard. I know Noel hears my voice when I come home and Im sure she is happy with that but I want to be able to juggle both of them, read the bumpy books to her, let her feel them, let her explore her surroundings, all while trying to catch up with her sister who is into everything because she is much more advanced due to her having the sight to see what she wants and go after it. That part really tears me apart.
We dont have close family by that can come and help us, so it makes it much harder.
Like I said before. Its not an Easy life - But its ...... MY life
10/6/09
Latest Dr Appointment -No Good News
Well yesterday we saw Dr Handa ( at Johns Hopkins ) for a check up. It was not good news for Noel. Her retinas have completley detached, when I asked the DR whether this meant that Noel is blind - he said " Yes "
Will write more later - Mommy is pretty upset : (
Will write more later - Mommy is pretty upset : (
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